The Survivorship Passport is a key tool for the structured, cross-sectoral long-term support of childhood cancer survivors and represents a paradigm shift in oncological aftercare: moving away from fragmented information towards continuous, transparent and quality-assured care across institutional and care boundaries. The aim is to make relevant information from acute treatment and follow-up care during childhood available in a standardised, digital format, thereby sustainably improving the reliability of care in adulthood. To this end, the Survivorship Passport consolidates treatment history and recommended follow-up care in a structured format and makes this accessible to patients and healthcare providers via the ELGA electronic health record.
A decisive milestone was reached with the implementation of the Survivorship Passport as an ELGA outpatient record. This successful registration, for which AIT researchers have already received awards, marks the transition from an innovation project to the national healthcare infrastructure and demonstrates the technical maturity and interoperability of the solution. The Survivorship Passport was first piloted at St. Anna Children’s Hospital, where it was successfully integrated into real-world care processes. This step represents a national breakthrough and lays the foundation for a wider roll-out to other centres and specialist departments.
Beyond its immediate benefits, the Survivorship Passport acts as a strategic driver of innovation: it has a modular structure, is scalable and can be adapted to other conditions. In doing so, it creates a sustainable foundation for coordinated care management and strengthens the position of the participating organisations as pioneers in digital healthcare.
The Survivorship Passport combines quality of care, digitalisation and system efficiency – and, with its successful integration into ELGA, sets a milestone for the future of aftercare in Austria.